Company Description:
The LCC Foundation is dedicated to supporting families across the United States and beyond who are affected by Leukoencephalopathy with Brain Calcifications and Cysts (LCC), a rare and devastating disease. The organization provides resources to help families navigate diagnosis, treatment options, and ongoing care. It actively advocates for and funds research to identify new treatments, therapies, and ultimately a cure for LCC. The foundation also focuses on raising awareness of LCC to improve early diagnosis and access to appropriate medical interventions. Board members contribute to this mission by strengthening the organization’s capacity and impact.
Role Description:
The Board Treasurer is a volunteer, remote role responsible for overseeing the financial health and stewardship of The LCC Foundation. Day-to-day activities include reviewing and interpreting financial statements, monitoring cash flow, and supporting budget development and adherence. The Treasurer collaborates with other board members and any staff or external accountants to ensure accurate record-keeping, compliance with applicable regulations, and timely reporting to the board. The role includes preparing or reviewing financial reports for board meetings, advising on financial planning and risk management, and helping to establish financial policies and controls. The Treasurer may also assist with the financial aspects of fundraising, grants, and donor stewardship to ensure resources are used effectively in support of the foundation’s mission.
Qualifications:
Strong finance and financial planning skills, with the ability to analyze and interpret financial data and support long-term financial strategy.
Experience working with financial statements and budgeting, including creating, reviewing, and monitoring organizational budgets.
Knowledge of accounting principles and practices, preferably in a nonprofit or charitable organization context.
Ability to communicate complex financial information clearly to board members and stakeholders with varying levels of financial expertise.
Commitment to the mission of supporting families affected by rare diseases, with high ethical standards and integrity.
Previous experience serving on a board or in a leadership role is beneficial.
Proficiency with standard office and financial software tools; familiarity with nonprofit financial systems is a plus.
Capacity to participate in remote meetings, collaborate effectively in a virtual environment, and dedicate consistent time to board responsibilities.
